26 March 2014

Today was an exciting day. I thought. Another day on the Tysabri trial at Kings. 

It didn't start well.  I told my pa that I needed him to come at 9.30 to help me dress. 9.45 and no sign so I battled with my socks and gave up on my shoes, taking them with me. This was the 12-weekly walking test so I had my FES on, but some problem meant it wasn't firing right. Tried moving the electrodes and it seemed right but each time I got up it wasn't right.  The longer I stood the more fatigued I got. In the end I gave up. Frustrated and tired and plain bloody angry. Need to take the orthosis in future as a backup. Grrr