26 September 2013

It's amazing how stupid little things creep up and surprise you. I had to tie a bow in the cord on my trousers. Easy. Something about the rabbit going round something or other. Anyway, the principle I learned age 5. About my earliest memory was sitting on the kitchen floor tying my shoe laces (first day at school). 

Sol anyway, this evening I tied the bow srraight off. No two or three failed attempts. Either I'm getting some of my manual dexterity back, or it was a fluke. I wonder. 

24 September 2013

Another of my annual visits to the neurologist. I tell him I have some oedema in my right ankle. The solution, apparently is to elevate my feet above my heart. I'm thinking if I could do that I'd be in the circus. I'll need to think creatively. 

I also tell him about my regained sensation in my fingers since coming off Copaxone. And the recent loss again in my thumbs. Swings and roundabouts. 

19 September 2013

Another good start to the day. I woke early so I had things in place so my PA didn't waste time. My walk was as good as yesterday. I had to be careful as the path is a little narrow but I made it without incident. Which is as good as it gets. I guess the total distance is about 30 meters. Not as far as I could do but a decent distance. 

I noticed in bed last night that I was able to pull my right leg up when laying on my side. Whether that is really an improvement or not I can't tell. In any case it's a fairly useless skill with minimal practical application. But it's good to be able to do it. 

Spasms are still as weird as ever. I need to stretch my legs when I plan to use them so it is what it is!

18 September 2013

Today was the first day of perambulation in the garden. Out to the water butt and back. It wasn't easy, I had to pause a couple of times but it felt really good. The path is wide enough for a wheel chair but a little too narrow for walking with sticks   

But I did it carefully under the ever watchful eyes of my PA. afterwards I felt good. It wasn't that far but it was good. 

I remembered to concentrate on the ground and to make sure my sticks were always safely planted before they took ant strain. I'll have to estimate the distance so I can plan to do more each time but it felt so good just to be moving again. 

17 September 2013

Just when I thought I had finished sending my thoughts into the ether, talking with the doctor on the clinical trial I'm on and be made two suggestions: that I should take more exercise and that I should keep writing. 

So my deepest apologies to you, my faithful virtual confidante but I'm afraid you aren't rid of me yet. 

I talked with my PA on Saturday about fitting a walk into my time with him and he agreed, so long as his agency is happy. They are so I guess that will start tomorrow. It's hard to get excited about something mundane but I am looking forward to it. 

The only annoyance at present is spasms in my legs. They seem a bit random but what started as an irritant at night when I was trying to sleep (that is fully corrected by clonazepam now seems a little more frequent during the day. 

Actually, that might not be true.  I think they've always been there but I ignored them. Well, I could tie myself in knots worrying about this and that.  But I will record it because it might be relevant. It happens when I use my legs after a bit of inactivity. Today it was transferring from old smokey to the couch. As I stood up and paused a moment to stretch my leg muscles and the spasms started with a force that caused my to fall forward onto the couch. Not that it takes too much to knock me off balance. 

So there we are. A day in the life. Back tomorrow I expect. Unless I get a better offer. You never can tell!